After Henrietta Lacks' death, her family never were told that her cells were still alive, and never participated in the financial profits from their use. The family seemed to assume that it was due to Henrietta's race, but subsequent events and court cases have proved remarkably color blind in denying patients the right to profit from discoveries made with bits and pieces removed from their bodies, even now that researchers are patenting genetic material, which seems like something a person would "own" if anything was.
Lots of interesting issues raised and discussed in this book about medical ethics, some fascinating history of the exploitation of American blacks in medical research, and a portrait of a horribly dysfunctional family, to boot. Great stuff, though it dragged on a bit past the point of satiation.
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